Sunday, May 18, 2014

The Glorious Unfolding

Things are pretty stable now in Brinley land as far as new surprises go so I wanted to give you all some photos to preen over. We got to do our first bath with Brin (she needed it, trust me) so that was fun. We got to the hospital today and she was in the stroller, which was cute. We so appreciate our nurse for getting Brinley used to all these "regular" baby experiences as they sometimes just don't even occur to us right now with everything else going on.

Pray for tomorrow as Brinley will be having a GI consult to talk about her G-tube and also to discuss the reflux issue. There is a surgery that can be done to help with the reflux (it's called Nissen if anyone wants to google it) which has some potential side effects but which, in Brinley's case, might be the best thing. They would likely want to verify that it is indeed reflux however so pray for wisdom for the doctors as they discuss the plan of action.










And I'll leave you with this youtube video of a Steven Curtis Chapman song that our nurse shared with us this morning which she heard on the radio and thought of us. Thank you Steven for writing this for us :) And thank you all for sharing in this glorious unfolding with us.



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