Tuesday, May 6, 2014

Bringing things back up to speed

Sorry for skipping a couple days but it has been emotional and exhausting for Sarah and me, as we got word that Brinley's temperature was back up and they had found blood in her stool. (on Sunday) Now, thankfully her temperature is back to normal and they attribute it to mucus buildup that needs to be sucked out periodically. Instead of writing it out in paragraph form here is the timeline of the last couple days:

  • Sunday morning - word that she had an elevated temperature again and blood in stool
  • Sunday afternoon - Sarah and I went to see Brinley
    • They took her off the ventilator and moved her to a mist collar (provides humidified air for her to breathe but breathing entirely on her own)
    • Feeds started again
  • Sunday night - temperature back to normal. Feeding but not great yet (the sedative and morphine in her system can jam things up)
  • Monday morning - I went to visit Brinley and got to hold her for about an hour and a half :) temperature still good. She has been moved from her incubator type bed to a crib. Doing pretty good on just the mist collar but occasionally her O2 would desaturate then come right back up. Feeds still not good yet. Completely off morphine!
  • Monday night - they put her back on the ventilator with CPAP to help her ween a bit since she kept desaturating. Feeds going better now. A couple of good stools. Off sedatives completely so no more drugs! They're hoping she will stop desaturating with the drugs out of her system. 
  • Monday night at the our house - Alessa wakes up with a fever and I wind up sleeping on the couch with her. This will make visits to Brinley a little more delicate since I don't want to bring her any germs. Sarah has also been feeling pretty run down the last couple days so she actually didn't get to see Brinley yesterday :(
  • Tuesday morning - Still trying to figure out who is going to see Brinley and when. The eye doctor will see her today
The first trach change is still scheduled for Thursday so things will be able to progress following that. Keep praying that she will be able to feed by mouth. Pray for the rest of us to be and stay healthy and have the energy to keep up with everything! We've been so blessed to have meals provided by so many people so we haven't had to think about cooking. So many people have also been watching our 3 big girls while we visit Brinley and we thank you so much for that! Please keep praying for our little girl as she goes through all of this and for us so we can spend time with her as she gets to do more baby things like just being held or sucking on a pacifier. Again, we love you all and covet your prayers so much.

Be anxious for nothing, but in everything by prayer and supplication, with thanksgiving, let your requests be made known to God - Philippians 4:6

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