Well, Brinley has had a couple days to recover and is doing well. She is off painkillers and actually up to full feeds already as of this evening so her digestion wasn't slowed down too much which is great! She is still on the respirator and the hope is to ween her off of that until she is once more on only the mist collar. Pray that she is able to make that transition well. She has of course traded her NG tube (feeding tube through the nose) for her mic-key button so her beautiful little face is now clear of tubing. She is still having lots of secretions, which is pretty normal but just means she needs to be suctioned often. Pray that clears up a bit.
Sarah and I and a few close friends and family members got to learn some infant CPR and tracheostomy care these last couple days as we prepare for home life with our bionic baby. Once more we got to meet some great people for this training and we're so grateful for all the amazing folks we're getting to meet through this.
Pray for the rest of our family for health. Sarah is very sick at the moment with what looks like bronchitis and is now on antibiotics; Alessa is on antibiotics for a sinus infection; Raina is on antibiotics preventatively for a Lyme carrying tick bite; Cailyn sounds like she swallowed a frog; I seem to be the only one not sick at the moment so pray it stays that way so I can take care of the rest of them. We also need to get our house ready for bringing Brinley home and being sick slows that whole process down so pray that would go well. We will try to think of some practical things people could help with for that since I know a lot of you will be asking.
Here is a video for you all to enjoy. Brinley is pretty mad at us in it but I love it because it is the first time she's really made this much sound so it's pretty exciting for us!
aww ... l love this one, was there for her first vocal 'fussing' :)
ReplyDeleteYes, you're the one that made her mad ;)
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