Greetings from Peter and Sarah

Greetings to all and thank you for taking time from your day to read.
For those who just stumbled onto this blog, an introduction:
We wanted to start some way of getting information to our friends and family about our baby girl, Brinley Noel, without having to worry about who knows what and who's been contacted. She was born at 3:21PM on Wednesday, April 23, 2014 at St. Peters hospital in Albany, NY with several birth defects and was transferred the following day (yesterday as I write this) over to Albany Medical Center where she is and will be undergoing many tests to see the extent of her defects and what they will mean. I will give some details on that in a bit.
Firstly, thank you to everyone who is already praying and continues to pray. We are feeling and needing them so don't stop! We are definitely doing better today than yesterday but we fully expect a roller coaster of emotions in the coming days and weeks.
Sarah is doing great after the delivery and was discharged the same day that Brinley was transferred so we were able to go over and see her and speak with the doctors and learn about the facility. We got some good well needed sleep last night and will go over to see our baby later this morning. Our other 3 precious girls have been with Sarah's parents and my parents but we will be able to see and get them back some time today if all goes well. All they know is that mommy is fine and the baby needs some help from the doctors so, if you happen to see them, please be careful in what you say.
So, details: the biggest issues seem to be defects in the development of her mouth. Her tongue is not fully developed nor is her epiglottis. She also has a cleft at the back of her mouth. There may be some concern that her trachea is smaller than normal but that remains to be checked at Albany Med. The ears, nose and throat specialist we spoke with suspected that some of the issue may have been swelling from the attempts at intibation over at St. Peter's. We will hopefully know more about that soon. She also has 1 missing set of ribs (11 pair instead of the usual 12). Her ears seem to be a little low set and her nose a bit flattened but neither of these are very dramatic. Her feet are polybifurcated (I may have that term wrong) which basically means she has 6 toes on each foot; there are 2 big toes partially fused together essentially. This is a minor thing against the others but all the little things lead to a question of a major thing being wrong and trying to diagnose a syndrome. We don't know anything about hearing or vision or cognitive function but she seems to be feisty at least.
Her heart, brain and kidneys have all been checked via ultrasound and are as normal as can be told from those instruments but they can't tell everything, particularly about the brain. When we were with the doctor and ENT specialist and a bunch of the nurses I asked if I could pray for them and for Brinley and they all let me so that was awesome! We are praying for healing and I want everyone at that hospital to know who to give credit to. I later warned the neonatologist there were a lot of people praying for her so if he finds something wrong one day and not the next to not worry. He may have thought me a kook at that point but we want God to have all the glory in this. We are excited for how God can use this whether in healing or throughout her life and ours however that winds up looking. At the same time we are hurting for our little girl and just want to be able to hold her and take care of her but we know she's in good hands. Everyone at Albany Med has been great and the facilities are excellent.
The main thing right now for Brinley is maintaining a stable airway. Everything else will follow.
We've had a lot of people asking how they can help practically so we will be in contact about that. Our other girls will need some watching at times as we visit Brinley. They are awesome girls and will understand but it will still be tough on them.
Pray that every day the doctors can give more good news. Pray that Sarah would heal quickly (she did just have a baby after all :) and that her milk supply will come in quickly. Pray for stamina for all of us and health so we can keep going and not be a risk to our baby.
If you're still reading, God bless you and thank you! Further posts will be much shorter. We love and appreciate you all so much!