I thought it was time for a video post so here I am :)
Things left out of the video:
- We finally met the pulmonologist in person and he spoke with us about a possible alternative to the Robinul... Botox! Yes, that botox. Apparently it can be injected near the salivary glands to decrease the amount of secretions without any side effects apart from dry mouth (which is what we're going for). Pray for wisdom that this is the right thing for Brinley.
- Many thanks to Sarah's parents and mine for watching the girls and taking them overnight. We could not have done it without them. Sarah and I are home alone tonight to rest and recover so pray for our health and energy level.
- We are still on track to bring Brin home on Wednesday. We'll plan on getting to the hospital bright and early to get her on the home ventilator for a couple hours before packing her up (so she can acclimate).
- We're still figuring out the process to get some home nursing assistance so please pray that will resolve quickly and that in the meantime there will plenty of help for Sarah when I have to get back to work.
p.s. Any coders out there recognize the array reference in the title?
It's either a Perl array or JavaScript? Thankful to the Lord that Brinley is doing much better. Bless your family.
ReplyDelete