Homecoming on the horizon!

We now have a tentative date (or dates rather) for bringing Brinley home; Tuesday June 10th or Wed. June 11th, just 2 more weeks! The main barriers between now and that happy day are getting trained and certified on all the equipment we will be going home with, including a respirator, suctioning equipment, feeding equipment, monitors, etc. (the etc just means I'm not sure what else but there is probably more). We also need to get our house ready to receive said equipment (electrical, space to actually fit it, etc). Of course, there is also getting approval from the neonatologists in charge of her care that they are sufficiently satisfied of our ability to care for Brinley at home. We have the contact person for our equipment supply company visiting our home on Friday to inspect and make recommendations for receiving and placing the equipment and training on the equipment will be next week at the hospital.

Yesterday, we got to do our very first trach change; yes, we pulled something out of our daughter's neck and put something else right back in it. It went perfect and really was easier than expected. It helped that we got to practice on a doll a few days ago of course. Brinley had the sutures taken out of her mic-key button today, a minor thing but worth mentioning. She still has not had any major desat issues since Sunday afternoon and is still on a rate of 12. Her nurse hooked up a different food dispenser that is just like the one we will be using at home so I got to practice on that a bit today. Tomorrow Sarah will spend a good chunk of time at the hospital with Brin, getting some practice on lots of different aspects of her care.

Some prayer requests:

• Pray that we will be able to continue to find people to watch our big girls with all our busy days coming up. We've had some wonderful people helping out so much and we certainly don't want anyone getting burnt out.
• The date of her homecoming makes it almost a certainty that neither Sarah nor me will make it to Sarah's brother's wedding which is the Friday following our bringing her home. That is, understandably, disappointing for Sarah to miss her own brother's wedding so pray for her to have peace despite this.
• Continue to pray for complete healing for Brinley in all aspects of her syndrome! 

We again want to thank everyone for all you do and have done for us: food, cleaning, babysitting, prayer, gifts, everything. We are so very blessed by you all! We are very tired and ragged at times simply because we are still being stretched and there are growing pains associated with that but God has been faithful all along the way and we are still feeling great hope for the long-term. The short-term has its ups and downs but our eyes are on God and we are not looking back. It's been so great to hear how many people are reading this blog and I just pray and hope it is more than just informative for you.

Goodnight friends, goodnight folks, 

[insert here some clever jokes]!

It's very late so please don't mind 

the hasty rhymes; you are so kind!

I posted this without my wife's review

I'm sure she'll glare and chuckle too.

To bed with me I think's the thing

Before I lose my following!

Just to make you smile :)